tag:blogger.com,1999:blog-1157694539788402550.post574570583751322580..comments2024-02-25T08:24:32.822+00:00Comments on Confessions of a Sewing Novice: What is actually wrong with me (a non-sewing post)westmoonhttp://www.blogger.com/profile/05305132395354227560noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-1157694539788402550.post-91351379134273973052020-01-04T08:15:20.545+00:002020-01-04T08:15:20.545+00:00Hi, I just found your blog, am reading backwards, ...Hi, I just found your blog, am reading backwards, and was curious about your illness - as I am sewing and ill myself.<br /><br />Please be aware that if you have a conventional vague diagnosis like yours (no offence about the vague I hope, but syndrome means no cause and usually no cure) and conventional treatments dont work, it might be wholly something else. Have you looked seriously into Lyme Disease and co-infections? Drs that are truly aware of these illnesses are scarce,though. You will need an ILADS dr and they are usually self paid :( Many many many go undiagnosed. Finding the right treatment might actually help you forward. Hoping to serve you with this. Best to you. <br /><br />MultiVroon, MultiVroon.blogspot.nlUnknownhttps://www.blogger.com/profile/06783012533207045015noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-1796557401310387152016-09-06T21:55:37.755+01:002016-09-06T21:55:37.755+01:00See, I always believed there had to be people who ...See, I always believed there had to be people who were as nerdily interested as I am! I am glad that you enjoy it too :Dwestmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-15697544091369590712016-09-06T02:54:56.417+01:002016-09-06T02:54:56.417+01:00I have a lot of friends with really difficult chro...I have a lot of friends with really difficult chronic conditions and you have my absolute sympathy and support. People do not understand well enough.<br />Also; I nerdily adore your planning posts. I don't get as much sewing time as I'd like, so I spend (time I ought to be marking essays or planning lessons) sketching out sample wardrobes or purchasing too much fabric online. There's probably a phrase for this: replacement activity?! I don't know, but thank you for all the work you share about wardrobe things; I think it's fascinating!Yafflehttps://www.blogger.com/profile/03423485149542083720noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-5094395741134598172016-09-01T14:22:05.443+01:002016-09-01T14:22:05.443+01:00Thank you, I am glad you enjoy my blog!
For vario...Thank you, I am glad you enjoy my blog!<br /><br />For various reasons, Paleo isn't for me (I have dietary restrictions related to my meds) but I do follow something like the Mediterranean Diet which is also suggested to have anti-inflammatory properties. For me, it only works at the margins but I do find I feel better if I eat a diet high in vegetables and fruit and low in more processed ingredients overall -- not least because there is a known interaction between my meds and salt and processed food tends to be high in sodium.westmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-19166168947529791482016-08-31T08:54:21.521+01:002016-08-31T08:54:21.521+01:00I am so sorry to hear about your problems! I have...I am so sorry to hear about your problems! I have enjoyed reading all of your incredibly well-written and very thoughtful wardrobe posts even though I have not commented previously. I feel a bit hesitant in writing this comment because I haven't commented before, and I don't want to seem like I am being preachy or pushy, but I have also had to deal with autoimmune issues impacting my weight, energy, and ability to sew. Funnily enough, I actually found something that helped me in the comments on another sewing blog, and while I realize that what has been helpful to me may not be generally applicable, I also feel like I might as well throw the suggestion out there because at best it will be helpful to someone and at worst you can just ignore it as the ramblings of a crazy internet blogger.<br /><br />A few years ago I was feeling generally crappy (won't bore you with details), and I was reading Hungry Zombie Couture (I miss that blog!) and she was discussing the issue of not wanting to sew when you gain weight and your clothes and TNT patterns don't really fit anymore. One of the commenters mentioned "the paleo diet" as a weight loss strategy, and after falling down the rabbit-hole of googling what the heck that was, several months (that have turned into several years) of doing lots of research and experimenting with my diet, I've found that following an auto-immune paleo diet (AIP) has really helped me control inflammation, and I know other people who follow the Wahls Protocol Diet (which is very similar) have also felt better. Obviously, I hope that you will be able to navigate the insanity of bureaucracy and get the treatment that you need, but I also know what it feels like to be stuck with medical treatments that feel like they are doing nothing, and how frustrating that is. I realize it is really challenging to change your diet, and that it probably feels really invasive to have someone sort of push the suggestion on you unexpectedly, but I also feel like it has been a major change that has made a large difference in my quality of life and energy over the past few years, and that if it has the potential to help other people that I should share my experience. Or at the very least pass along whatever internet karma I used in finding that original comment in the first place.<br /><br />Anyway, I hope you are not offended by my suggestions. I always feel weird talking about it unsolicited, but I also feel like the diet changes have been really helpful in managing my autoimmune conditions and wanted to share in case it could be of use to you. I wish you the best of luck with everything, and I hope that you will feel better so that you will be able to continue sewing and posting and doing the other things you enjoy!Doctor T Designshttps://www.blogger.com/profile/01579737383030185168noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-80003634153575178472016-08-30T20:01:42.794+01:002016-08-30T20:01:42.794+01:00Solidarity indeed! Chronically ill sewers unite :D...Solidarity indeed! Chronically ill sewers unite :Dwestmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-74771332909034944812016-08-30T19:56:54.234+01:002016-08-30T19:56:54.234+01:00Thank you for sharing. I'm chronically ill and...Thank you for sharing. I'm chronically ill and I sure can relate! Please keep sewing, keep blogging, keep telling us how you are. Solidarity in healing. maxmaxzedhttps://www.blogger.com/profile/16806686222655014142noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-56283247098900534422016-08-30T18:33:10.651+01:002016-08-30T18:33:10.651+01:00Thank you! I am glad you enjoy reading what I writ...Thank you! I am glad you enjoy reading what I write. :Dwestmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-15750911840715904162016-08-30T18:32:43.986+01:002016-08-30T18:32:43.986+01:00I agree! It's so nice to have these little sew...I agree! It's so nice to have these little sewing successes -- and even failures -- because at least I feel like I am doing SOMETHING.westmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-85580400307642030652016-08-30T01:48:18.831+01:002016-08-30T01:48:18.831+01:00I love love love your blog, no matter what you are...I love love love your blog, no matter what you are writing about. I have dealt with complex health issues myself and work at a small US non-profit that provides supports for people with cancer, so I understand how one may not want to share much, if anything, about a serious diagnosis. In the meantime, your musings and efforts in the realm of sewing are instructive and inspiring to me, and I appreciate your excellent humor about the challenges you encounter! (i.e., the pants fitting post). Sometimes creativity is a way of projecting one's self into the future that is yet to come, and there's a lot of good in that. Imagination heals, and the process of making things feeds the soul. I am wishing you luck with the NHS. Thanks for sharing, and I hope things improve. Mapmakerhttps://www.blogger.com/profile/11183642128130259266noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-10391687202838145702016-08-29T22:33:28.994+01:002016-08-29T22:33:28.994+01:00I wish you all the luck in finding the right treat...I wish you all the luck in finding the right treatment, I also suffer with an illness and sewing has become my sanity. Keep planning, help organising and keep sewing as much as you can, it's an amazing feeling when it all comes together, a sense of achievement is a wonderful thing. Lynsey Janehttps://www.blogger.com/profile/09165736910808915070noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-67966786763894794252016-08-29T20:51:36.888+01:002016-08-29T20:51:36.888+01:00Thanks.Thanks.westmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-40407939161009077662016-08-29T20:51:29.404+01:002016-08-29T20:51:29.404+01:00The thing I am waiting on is also a biologic. I am...The thing I am waiting on is also a biologic. I am glad to hear it works for you! The feedback tends to be very good from the (very few) people who've tried it, but yeah, the NHS is in such a state that biologics, especially for rare diseases like mine where there is necessarily very scant evidence because of very small numbers of patients, are considered an expensive optional extra. I have everything crossed that I'll eventually get the go ahead, but I am braced for a no.westmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-66656512762991507502016-08-29T20:49:35.125+01:002016-08-29T20:49:35.125+01:00Thank you! I have to admit, I probably would never...Thank you! I have to admit, I probably would never have become so detailed/obsessive about my data gathering if I had been leading a more normal life with more distractions. As it is though, it's another little thing I use to keep my mind occupied. <br /><br />I definitely agree with you about disliking that wardrobe planning = necessarily minimalist formula. I definitely don't think it's necessary to be a minimalist. I have a friend with a huge wardrobe who also does a lot of careful, planned shopping/sewing, and she is totally happy to own five black blazers because she's carefully selected different styles, lengths and collars that go best with different outfits. It's not minimalist, but it is very organized and purposeful.westmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-87448948354193981582016-08-29T20:39:54.379+01:002016-08-29T20:39:54.379+01:00I'm sorry to hear you're ill as well! Take...I'm sorry to hear you're ill as well! Take care of yourself!westmoonhttps://www.blogger.com/profile/05305132395354227560noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-91503992399237936132016-08-29T18:03:00.247+01:002016-08-29T18:03:00.247+01:00My prayers are with you! God bless you!My prayers are with you! God bless you!Darahttps://www.blogger.com/profile/13081976671786778615noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-37418047643014031892016-08-29T17:22:57.600+01:002016-08-29T17:22:57.600+01:00Sounds terribly frustrating and I hope the NHS com...Sounds terribly frustrating and I hope the NHS comes around for you. I fell ill a few years back with a form of inflammatory arthritis that seemed to appear from nowhere and made me incredibly fatigued. After losing 18kg, having my mobility extremely compromised, reducing my work to one day a week, and taking a lot of painkillers I was lucky enough to get onto the medication that worked for me. It is unfortunately one of the very expensive biologics, but I'm incredibly fortunate that here it's covered by our NHS equivalent. None of the other meds seemed to work for me at all but the biologics made me feel better within a week of the first injection - I put down my walking stick and haven't needed it since and almost immediately stopped all painkillers. I hope you get a chance to find the meds that work for you - it's terrible to know that they might be there, but to be denied access. Good luck ! Unknownhttps://www.blogger.com/profile/06181372472263667726noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-88429679971206999762016-08-29T14:55:58.841+01:002016-08-29T14:55:58.841+01:00I really like reading your wardrobe planning posts...I really like reading your wardrobe planning posts! Even though that level of organization/reflection on the topic isn't something I'm interested in for myself, I think it's fascinating to read such an intelligent, purposeful reflection on the subject. Especially since so much discussion of wardrobe planning seems committed without question to the idea that minimalism is the right choice for everyone, it's good to see that considered more fully.Sommerhttps://www.blogger.com/profile/12798485161435476962noreply@blogger.comtag:blogger.com,1999:blog-1157694539788402550.post-56390806024628040412016-08-29T14:51:03.963+01:002016-08-29T14:51:03.963+01:00I completely understand your pain, I was diagnosed...I completely understand your pain, I was diagnosed with Fibromyalgia and chronic fatigue syndrome at 34 I am 40 now and struggle every day to live a normal life. We have to do what we can do get through the day. I admire your honesty and hope that you get what you need to make life easier for you, enjoy the things you can and take rest when you need it. Anonymoushttps://www.blogger.com/profile/11349701317227529715noreply@blogger.com